Today on OPEN MIC on Alzheimer’s Speaks we talked all things dementia with Steven A. Barbieri and Truthful Loving Kindness, both living with dementia. It was a very interesting show with great insights. We covered a variety of topics listed below.

Open Mic on Alzheimer’s Speaks Talks All Things Dementia

• The diagnostic process and the difficulty in getting an actual type of dementia pinned down.
• Like Cancer, Dementia is a category, not an official disease like Alzheimer’s disease, Lewy Body Dementia, Vascular, FTD, CTE…
• We also dive into the benefits of exercise.
• The importance of the Phrases – Nothing About Us Without Us and Nothing About Me Without Me
• Organizations having a “Token” person living with dementia on the board… and the impact of that.
• Truthful’s Blog on dementia symptoms and strategies.
• Using a cell for strategies, pictures to help dementia things or events, calendar, and reminders.
• Quality of Life for people living with dementia.
• Bidets, what a wonderful tool as the disease progresses.

Helpful Dementia Resources

• National Council of Dementia Minds also known as Dementia Minds

• Life 360 – The Family Locator APP

• Tru’s Blog

• GrandPad – A Communication and Engagement Tool

Mark Your Calendars for our Next Open Mic on June 18th at 2 pm ET, 1 pm CT, 12 pm MT, 11 am PT

Share Your Story, Service, Product, or Tool on Alzheimer’s Speaks Open Mic

Join Alzheimer’s Speaks Radio today on Open Mic as we shift dementia care from crisis to comfort around the world one episode at a time.  We love raising all voices and delivering sound news, not just sound bites!  So, we invite you to call in and tell us how you are improving dementia care. We just ask all parties to hold to have a respectful conversation.

Share your dementia or caregiving story. Tell us about your service, product, or tool you have that can help others dealing with dementia.  Have you written a book, penned, or produced a song or film?  If so, we want to hear from you.  Maybe you are working on a research project or have a trial you are promoting. 

Contact Us To Join Us On The Next Open Mic  https://alzheimersspeaks.com/be-a-guest/

Our Panel today consists of Craig Hanke, Ginger Smith, Harry Urban, Laurie Scherrer, Jennifer Bute, and Truthful Loving Kindness who are living with dementia.  You will hear about when they got diagnosed, how their diagnosis changed over the years, and how they are living life well with a form of dementia. 

Some of our panelists have been living 15 to 20  plus years with dementia!

Educational Panel – Videos Raising Voices of Those Living with Dementia Dementia Chats™ was created in 2012, to educate people living

Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.

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Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort worldwide one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.

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