Dementia Chats Today’s Recorded Session
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For the Recorded Version
Dementia Chats™ -While We Can still Can
Voices of Those Diagnosed with Dementia
Dementia Chats™ was created with the intention to educate people living with dementia; their care partners both family and friends as well as professionals and advocates.
Our Mission is to Shift Our Dementia Care Culture™. Our goal is to remove stigmas related to the disease by engaging people in conversation, answering their questions, listening to their comments and raising awareness in a positive light. We are firm believers in giving hope and empowering others to live with the disease not as the disease. The general format of the sessions is interview style. Lori La Bey will facilitate each session. She will be asking out Experts Living with Dementia questions and pulling participants into the conversation to get their questions answered and their comments heard.
Lori La Bey, Founder of Alzheimer’s Speaks will host the webinars. She is a speaker and trainer on dementia and caregiving. Her mother has struggled with dementia over 30 yrs and is now in her end stages of the disease.
Our Experts Have Alzheimer’s Disease or Another Form of Dementia.
Our Primary Experts are:
Rick Phelps, Founder of Memory People™, which is a closed support group for those with dementia, their care partners, professionals and advocates. Rick was diagnosed in 2010. Rick and Phyllis June are out celebrating the holidays and so Rick will not be with us today.
Harry Urban, is a member of Memory People™. Harry was diagnosed in 1995 and is loaded with great information and insights for both those living with the disease and those that care for them.
Dena Dotson, also a member of Memory People will be join us. She is 48 and was diagnosed at age 47 with Lewy Body Dementia w/possible Alzheimer’s. Dena lives in a small town in Oregon with her Husband and a 15 and 25 year old sons. Everyday life is increasingly problematic and I want to do my best to talk and increase awareness and hopefully lessen the stigma.”
Leeanne Chames, is Rick Phelps Administrative Assistant on Memory People and she will help manage the webinar as well as participate in the conversation.
IMPORTANT NOTICE and DISCLOSURE:
When entering the webinar you will need to sign in as a guest. If you use the chat box to communicate with us, your name will show up in the chat box and will be recorded as part of the session. If you are not comfortable with your real name being shown and recorded as part of these sessions, please refrain from using the chat box or don’t sign in using your real name. You may want to use your first name only. We will interpret your decision to participate in any session, that you are giving us your permission to be recorded. These sessions and recordings are the copyright of Alzheimer’s Speaks.
Please Check Alzheimer’s Speaks Resource Website too!
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I have always enjoyed this blog. . . I’m currently working on a book about our family’s experience regarding Alzheimer’s based on my blog postings the past several years. Some of your readers have probably read my posts. Here’s our story
http://www.usaprojects.org/project/the_best_hell_ever_be
Thanks for writing Sandra. Good luck with your project!
Lori
We have met and worked with hundreds of people living with dementia and the families who love and care for them. There is so much pain and hurt that surrounds this dementia journey.
You are correct. This disease has a lot of pain associated with it, but if people are willing to look they will find joy is there too. But like the saying goes you won’t find what you are not looking for. Thanks for writing.
Lori
Max Wallack is a student at Boston University and a Research Intern in the Molecular Psychiatry and Aging Laboratory in the Department of Pharmacology and Experimental Therapeutics at Boston University School of Medicine. His great grandmother, Gertrude, suffered from Alzheimer’s disease. Max is the founder of PUZZLES TO REMEMBER. PTR is a project that provides puzzles to nursing homes and veterans institutions that care for Alzheimer’s and dementia patients.
Thanks for writing. We love Max and his work!
Lori
“An integrated society where people with dementia live in “normal” home like situations throughout their lives with support to continue to engaging in everyday community activities”. The most important word in this definition is normal, our vision is that people with dementia will be facilitated by their community to continue to live in their community but also to adapt to the changes that a diagnosis of dementia can bring.
Thank you for writing today
Lori