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Lori La Bey, host of Alzheimer’s Speaks OPEN MIC, talks with several researchers from four different trials and studies which are available for caregivers, people living with certain dementia’s, and even one where people don’t have to have a formal dementia diagnosis.

#CaregiversStudies #DementiaTrials #AlzheimersStudies

Learn:

1. University of Wisconsin–Milwaukee working on a digital health research study focused on supporting caregivers of individuals with dementia. myHESTIA stands for my Healing Ecosystem for Self-care and Therapeutic
2. Rice University – Houston Texas has a study called TSCAN, it is conducting. The study is a national, fully remote research study funded by the National Institute of Health, which examines how people experience and process emotions during the process of caregiving.
3. Benjamin Rose Institute on Aging – Cleveland, Ohio has the SHARE for African American Care study, which is designed and executed to culturally informed outreach strategies, cultivates community partnerships, and ensures the meaningful participation of Black and African American families in research.
4. Dartmouth College – Hanover, New Hampshire, has a study called the RealVision project using smartphone technology to detect early behavioral changes linked to Alzheimer’s disease and related dementias (ADRD). By analyzing subtle patterns in speech, movement, facial expressions, and daily activity through digital phenotyping, we aim to identify signs of cognitive decline before clinical symptoms appear. Your participation will support the development of tools for earlier detection and intervention, helping improve outcomes and reshape the future of brain health.

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Contact Information

Caregivers TSCAN – Rice University

Website   https://tscan.rice.edu

Email

Phone   713-348-3528

MyHestia – University of Wisconsin

Contact – Dr. Priya Nambisan, PhD      

Phone    414-251-5217

Website: http://myhestia.org

Contact – Nagadeepthi Doddaka

Website: http://myhestia.org/waystousemyhestia.php

Email

Phone 414-275-2475

Facebook   https://www.facebook.com/SelfcareEcosystem

SHARE African American Care – Benjamin Rose Institute on Aging

Contact – Donna Salaam (216) 373-1747

Email

Website   https://www.benrose.org/

RealVision Project – Dartmouth College

Contact – Vedant Tapiavala

Email

You Can Google RealVision Study Dartmouth

Website    https://realvision-web-reach.lovable.app/

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