Dementia, Building Community & Engagement
Dementia, Building Community
& Engagement
Click on the graphic below to listen to Alzheimer’s Speaks Radio.
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This will be a very exciting program. Today we will have on of the top leaders in the world on culture change with us… Dr. Bill Thomas.
I hope you can join the conversation as it is always fun and enlightening when talking with Bill. Today would be the day to take advantage and ask this man your burning questions on aging, culture change, caregiving and dementia.
To Contact Dr. Thomas please go to his website:
Our second guest will be Harry Urban, one of the Experts living with memory loss on Alzheimer’s Speaks FREE webinar series Dementia Chats. He is also the Founder of “Forget Me Not.” Harry will talk about his new group and their launch to assist those the Spanish community.
Harry can be reached via Facebook. Search Harry Urban
Our third guest will be Sherice Recke, known to many as Shauney Baby. She has been working in the entertainment industry for many years and is one of the most celebrated female drummers both nationally and internationally. today we will discuss the benefits of Drumming with those with Dementia.
Shauney Baby can be reached below:
Website: www.drumforgoodnesssake.com
Phone: 
323-876-5173
Email: info@drumforgoodnessssake.com
Facebook: http://www.facebook.com/drumforgoodnesssake
Twitter: https://twitter.com/DFGSLA
I have recently been diagnosed with vascular dementia. My husband, children and close friend all know about my diagnosis. My daughter actually recorded my symptoms,and initiated the testing process. I don’t know how or when I should let my husband’s family know. I’m still embarrassed by the diagnosis even though I know I shouldn’t be.
HI Plauan,
First, I’m so glad to hear you saw you know you shouldn’t be embarrassed of having your diagnosis, but I do understand your hesitation with the stigmas attached to the disease. As a family we did not talk to others about it and hid my mother’s memory problems. At the time, I don’t even think we were conscious that that was what we were doing. Looking back, I could see that others were noticing things as well, but they to did not want to over step lines or cause any type of embarrassment. If I had it to do all over again I would sit down with family and close personal friends to explain and educate them on the disease, what to expect and most importantly how they can help over time. People want to help but we have to guide them as to how and what is helpful. When you and your family are ready, together I suggest having an honest conversation with those you love.
I must say though, that maybe those that will disappoint you and not be able to handle this turn of events. I have found it’s best to let them go and focus on the people in your life who understand and want to continue to be in your life. I also have found many new people will come into your life to replace those that can not or will not handle the disease.
Best of luck and keep us posted
Lori
Thank you for taking the time to respond to my situation. I know that my husband’s family would be understanding, and I agree that it would be better to have everything in the open. I will talk with my husband to get his input.
Good Luck and keep us posted
Lori
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Thanks for taking the time to write Mirta. Glad to hear you are going to join our community
Lori