Dementia Influencers
Shifting Dementia Care From Crisis To Comfort Around The World
This episode of Conscious Caregiving with L & L is loaded with great insights and resources as we talk with Dementia Influencers around the world. Some are professionals, some are care partners turned influencers, and others are living with a form of dementia and share their personal experiences, needs, and priorities for change. Each person is making a difference in a big way. We hope you find this show as fascinating as Lance and I did. Please check out all of the wonderful resources below.
Shifting Dementia Care From Crisis To Comfort Around The World
Norrms Mc Namara is the founder of the Purple Angel dementia movement now recognized in many countries around the world and soon to launch in South Asia this summer.
Norrms is a prolific writer and shares his work via books, but also on social media to help educate, remove stigmas and give hope to those diagnosed, their families as well as professionals. Norrms has had a huge influence on shifting dementia care around the world. He has helped get MP3 players into the hands of those in need for FREE, been a major force in expanding the Memory Café movement and the World Rocks Against Dementia WRAD globally.
Contact Norrm Mc Namara
Purple Angel Website
Facebook World Rocks Against Dementia
Facebook Purple Angel MP3s WRAD Campaign
LinkedIn @norman Mc Namara
Facebook @normmac
Twitter @ NormanMc Namara
Rev. Katie Norris, Montessori Based Dementia Care Practitioner, Owner of Recourse Coaching
Rev. Katie Norris has been a Montessori dementia care specialist for 14 years and is an AMI Montessori for Aging and Dementia Practitioner. She is the primary author of Creative Connections in Dementia Care and she teaches Montessori care to family members, care communities, and home health agencies. She is also a family dementia care partner as her father has Alzheimer’s and her mother had Lewy Body Dementia.
Contact Rev. Katie Norris
Website
YouTube
LinkedIn @Rev Katie Norris
Facebook @Creative Connections Dementia
Instagram @CreativeConnectionsDementia
TikTok @CreativeConnectDementia
Shifting Dementia Care From Crisis To Comfort Around The World
Vicki de Klerk-Rubin is the Executive Director of the Validation Training Institute
Vicki de Klerk-Rubin is the Executive Director of the Validation Training Institute and a certified Validation Master Teacher. She is the author of Validation Techniques for Dementia Care and Validation for First Responders. Together with her mother Naomi Feil, the founder of the Validation method, she co-authored the revisions of Validation: The Feil Method and The Validation Breakthrough. Ms. de Klerk-Rubin holds a BFA from Boston University, an MBA from Fordham University, and is a Dutch-trained registered nurse. Since 1989, Ms. de Klerk-Rubin has given Validation workshops, lectures and training programs around the world.
Contact Vicki de Klerk-Rubin
VTI Site
YouTube
Mail List
Dr. Jennifer Bute, Living with Dementia, International Advocate
Dr Jennifer Bute worked in Africa as a doctor before working as a GP for 25 years involved in medical education. And was an honorary lecturer at Southampton University, She had to take early retirement when diagnosed with dementia but continues to use her skills She speaks at conferences, on radio, and has been spoken on International radio and appeared on UK television programs raising awareness and understanding of dementia. She passionately believes more can be done to improve both the present and the future for those living with dementia. Her book ‘Dementia from the Inside A Doctor’s Personal Journey of Hope’ is her story and explains these principles. Jennifer is well educated and has her MB BS, D ObstRCOG, Dip HPE, and FRCGP. She lives with dementia, has family members with the condition, and has lived for 14 years amongst others with dementia so knows what works and what does not!
Jennifer’s Book
Video- The Dragon Story
Contact Dr, Jennifer Bute
Website
Shifting Dementia Care From Crisis To Comfort Around The World
Mary Underwood, Dementia Care Specialist. Founder of Empowermentia
Mary Underwood is a social worker who has been in the field of memory care for over 35 years. She has worked in a variety of settings including home care, adult day programs, assisted living and nursing homes. Over the years, she has developed innovative programs and training sessions. She has received local and national awards for her in the field. In addition, Mary’s family was personally impacted by dementia when her dad was diagnosed in 2015.
Mary’s Website
Contact Mary Underwood
Cyndy Luzinski – Executive Director of Dementia Together – MS, RN, L® Practitioner
Cyndy Hunt Luzinski is an advanced practice nurse with a nursing background that ranges from critical care to community case management. In honor of her dad, she founded Dementia Together, a nonprofit organization in Northern Colorado that offers education, enrichment, and hope. Cyndy currently serves as executive director of Dementia Together, building the organization with her team, from a volunteer dementia-friendly community initiative into an impactful organization serving more than 2700 people a year. Cyndy is the first SPECAL (pronounced “speckle”) practitioner in North America leading the way to share the simple, positive, evidence-based, UK-originated SPECAL Method with anyone who wants to learn how to make living well with dementia the expectation, not the exception.
4025 Automation Way Unit F2, Fort Collins, CO 80525 Office 970-305-5271
Contact Cyndy Luzinski
Website
Shifting Dementia Care From Crisis To Comfort Around The World
Laurie Scherrer – International Advocate, DAA Executive Board Member and Programs Director
Laurie Scherrer was diagnosed with Early Onset Alzheimer’s & FTD at the age of 55. Unable to continue a professional career she turned her focus towards helping others through their dementia journey. Laurie serves on the Dementia Action Alliance Board of Directors. She is an international speaker and has been featured in many articles and documentaries.
On her website, dementiadaze.com Laurie shares her feelings, challenges, symptoms and adjustments in hopes of encouraging other Persons with Dementia and care partners to explore ways to live beyond dementia. Together with her husband Roy, they work hard trying to identify the obstacles that trigger Laurie’s challenges and symptoms and then figure out what adjustments they can make to overcome the barriers. “We don’t automatically accept that I CAN’T do things anymore, instead we try to figure out HOW I CAN.”
Contact Laurie Scherrer
Personal Website
Dementia Action Alliance
Debbie DeMoss Compton – CEO and Founder, The Purple Vine LLC
Debbie Compton is a three-time caregiver for parents with different forms of Dementia. She is a Certified Caregiving Consultant and Advocate, Educator for the Alzheimer’s Assoc., speaker, and author of 10 books.
Debbie founded The Purple Vine, whose mission is to empower caregivers to reduce stress, block burnout, and laugh again.
Debbie’s latest work is a collaboration book titled The Caregiver’s Advocate, A Complete Guide to Support and Resources, produced by Brave Healer Productions and available for purchase in early July 2024.
Get Your Free Gift Now!
Contact Debbie DeMoss Compton
Website
Books
Facebook www.facebook.com/Caregiving.Book
Shifting Dementia Care From Crisis To Comfort Around The World
Ellen Belk, BC-DEd, CDP – Silver Living Strategist. Founder of Keep In Mind, Inc. & Creator of The Keep In Mind Dementia Education Community
Ellen Belk is a board-certified Dementia educator, Holistic Dementia care solutions expert, and founding owner of Keep In Mind, Inc. A sought-after web educator & Keynote speaker, Ellen has over 22 years of professional leadership in long-term living operations combined with 24 years (and still counting) of primary family caregiving for both of her parents. Join Ellen on the ‘Keep In Mind Dementia Education Community’, where her mission is to Elevate the Global Dementia IQ – one Student at a Time!
Contact Ellen Belk
Phone 803-3963824
Personal LinkedIn
Business LinkedIn
Website
Isabelle Mumby, Commercial Manager, Mumby’s Live-in Care
Isabelle Mumby is the daughter of Trevor Mumby MSc. MBASW. AGPA (USA) and Commercial Manager at Mumby’s Live-in Care, a family-run specialist Live-in care provider in Oxfordshire, UK. Trevor is a co-director of Mumby’s Live-in Care, a recognized psychoanalyst, counselor, and dementia publications author. Trevor developed The Smile File and the 12 Hand Grenades, both revolutionary tools that carers at Mumby’s Live-in Care use to better understand their dementia clients and increase their confidence in caring for them. Trevor has provided consulting services to family members who are struggling to manage their daily difficulties and offered coaching sessions to Mumby’ Live-in staff.
Contact Isabelle Mumby
Trevor’s Website
Mumby’s Live-in Care Website
LinkedIn @Isabelle-Mumby-Live-in-Care
LinkedIn @Mumbys-Live-in-Care
Facebook @MumbysLiveinCare
Instagram @MumbysHomeCare
Shifting Dementia Care From Crisis To Comfort Around The World
Website: https://consciouscaregivingll.com/
Lance A. Slatton The Senior Care Influencer
Lance A. Slatton is a dedicated Writer, Author, Influencer, and seasoned Healthcare professional with a rich background spanning over 20 years in the healthcare industry. As a beacon of knowledge and support in the realm of senior care, Lance’s journey is not just a career but a calling to make a meaningful difference in the lives of families, caregivers, and their loved ones as they navigate the complexities of long-term care.
Lance’s Website https://lanceaslatton.com/
All Home Care Matters Website https://www.allhomecarematters.com
Lori La Bey Global Thought Leader Shifting Dementia Care
Lori La Bey is a passionate and inspiring keynote speaker and the founder of Alzheimer’s Speaks, a Minnesota-based advocacy group and media outlet making an international impact by providing education and support for those dealing with Alzheimer’s disease and other dementias. Her own mother struggled with dementia for 30 years. In 2011, Alzheimer’s Speaks Radio launched as the first program dedicated to dementia in the world and is still named the #1 Alzheimer’s podcast. “Dementia Chats™,” webinar series was created in 2011, with experts living with dementia. In 2020, a 37-year dream came true when Lori partnered with Dave Wiederrich founder of the Memory Café Directory, to launch Dementia Map a global resource directory, of which Lori is now the sole owner. In 2021, she partnered with Master Artist, Mary Crescenzo, to launch Dementia And The Arts™ where they raise awareness of abilities through the beauty of the arts. Lance A. Slatton and Lori also joined forces in 2023 and launched Conscious Caregiving with L & L a highly popular podcast.
Alzheimer’s Speaks Website https://alzheimersspeaks.com/
Dementia Map Website https://www.dementiamap.com/
Shifting Dementia Care From Crisis To Comfort Around The World
Additional Resource
Creative Connections Book
Montessori for Dementia Book
Dealing with dysfunctional families and narcissism videos
Understanding Trauma and Dementia
Open Mic With Dementia Influencers on Alzheimer’s Speaks
The Magic of Memory Cafés Measuring Impact By Smiles and Friendships
Adaptive Clothing
https://www.buckandbuck.com
https://joeandbella.com
Anxiety & Sundowning Products
Adaptive Reading
Books
AlzAuthors – Over 300 Authors on Dementia
Reminisce Line of dementia-friendly books
Dementia Home Care, How to Prepare Before, During, and After. https://tracycramperkins.com
The All Home Care Matters Official Family Caregivers’ Guide
Betty the Bald Chicken – Lessons in How to Care
Teepa Snow The Positive Approach To Care
Co-Hosts and Producers
Lance A. Slatton
& Lori La Bey
Learn About The Programs Alzheimer’s Speaks Offers
Learn More Here https://alzheimersspeaks.com/dementia-and-the-arts/
Dementia Map Global Resource Directory https://www.dementiamap.com
Busting Stigmas By Highlighting Possibilities
Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.
Contact Lori La Bey or set up a time to chat with her. Get your questions answered or discuss your branding needs.
Listen & Subscribe to Alzheimer’s Speaks on Your Favorite Podcast
“Cue for Good Makes Website Issues Melt Away With Their Amazing Services! – Lori La Bey CEO of Alzheimer’s Speaks & Dementia Map
Check Out Alzheimer’s Speaks FREE Educational Resources
ARe You Dealing With Sundowning? Check Out Twiddle. They Design Products that Prevent and Reduce Anxiety to Help Restore Situations to a Peaceful State.
Tips to Live in Moment from Those Living with Dementia
Learn More About Dementia Chats
Maude’s Awards gives three annual $25,000 awards to organizations and up to five $5,000 awards to individuals excelling in one of four categories of care for persons living with dementia and care partners. Applications have closed for 2024, but we will let you know when the winners are announced.
Order Your Book Now – A Great Gift For Anyone, At Any Age, At Any Time
Betty the Bald Chicken – Lessons in How to Care is a wonderful tool for anyone struggling and feeling like they don’t fit in anymore. Bullying, Chronic Illness, Addiction, Divorce, Death and Dying, Ageism, Racism, and more.
