Learning, Coping and Surviving the Dementia Journey

Alzheimer’s Speaks Radio Discuss

Learning, Coping, and Surviving the Dementia Journey

Tuesday, we will have Former Wisconsin Governor, Martin J. Schreiber who is a crusader for Alzheimer’s caregivers. As a sole caregiver for his wife Elaine, he totally understands the challenges of caring for a loved one with dementia. Today we will discuss his book, “My Two Elaine’s” and the tips he will share with our audience.

Contact Info for Former Governor Martin J. Schreiber

Twitter.com/MyTwoElaines @MyTwoElaines

Dementia Cruise of Compassion & Camaraderie

https://youtu.be/XLNFPSEdf8I

We are honored by your response to our offering of the Dementia Friendly Symposium and Cruise and we are encouraging people to book their cabins before we are sold out!

For more details on the symposium and cruise go to https://alzheimersspeaks.com/cruise-with-us

Click here for the Symposium Program

Kathy Shoaf the travel agent handling the symposium and cruise can be reached at: 219-608-2002 or email her at Kathy.Shoaf@CruisePlanners.com

Click Below to Download the Tips

Take The Survey Now and Help Define

What “Quality” Means to You and Your Family!

Open To All In The U.S.

University of Minnesota PhD candidate Heather Davila describes a survey to get input from people age 55+ family members, and professionals who work in the field of aging services about which aspects of “quality” in aging services matter most.

To take the survey go here: www.tinyurl.com/Qagesurvey

Contact: Heather Davila,

Email: wood0132@umn.edu

Find a Memory Cafe & Get Resources

Push Research Forward- Join the A-List

An Important message from our friend Meryl Comer:

Only twice in my twenty plus years as an Alzheimer’s caregiver has a doctor ever asked whether I was doing okay. Yet my husband would have never made the clinic appointment on time if I had not gotten up extra early to bathe, dress, feed, manage his resistance and drive him there. Now here’s a chance to be heard!

Researchers from the Mayo Clinic want to learn what matters most to you when you go to the doctor with your loved one. They need volunteers for an online focus group who are current or former caregivers for a loved one with dementia.

Click here to learn more about this important Mayo Clinic caregiver study asking what matters to you when you go to the doctor with a loved one.

Study participants will be asked to join an online focus group and answer several questions over a week and a half posted by the moderator. Participants can choose to remain anonymous. Their goal is to help healthcare providers better support and communicate with caregivers by learning:

How health care providers can best help caregivers provide optimal care to loved ones while maintaining their own health.
How involved caregivers want to be their loved ones’ healthcare.
What the ideal “care team” looks like.

Please click here for more information about this important Mayo Clinic caregiver study.

Your opinions are critical to improving the experience for all caregivers when they accompany loved ones to doctor’s appointments. Let’s not miss this opportunity to make doctors tune into what matters to us.

Meryl Comer, A-List Team Member & 20-year Alzheimer’s care partner